Permission to implement this survey has been sought from the
Monash University Human Research Ethics Committee and Aboriginal Health and Medical
Research Council (AH&MRC).
The ethics relevant to this survey are:
Voluntary and informed consent to participate. Participants
will be informed about the nature and purpose of the survey through a plain
language explanation and will have the opportunity to ask for more information
through a study email which will be closely monitored during the recruitment
phase. Completion of the survey is entirely voluntary, and no-one is obliged to
complete it. For potential participants who are not confident in reading the
plain language statement, we will hold survey days in community centres where
an oral explanation of the study can be given and people can complete it with
the assistance of a trained research assistant.
Protection of privacy and confidentiality. Individual invitations
will be sent to all households with a postal address and people can make an
independent and private decision about whether they want to participate. The
survey is completely anonymous and no individually identifying information is
collected. Participants are asked to ensure that they do not write their name
on the survey. Only summary data from which no individual could be identified
will ever be published.
Risks to participants. The information being sought in the survey
is of relevance and interest to people living in the East Gippsland Local
Government Area. We do not believe that there are significant risks associated
with completing the survey. We acknowledge that in addition to inconvenience
there might be some discomfort in being asked questions about their experiences
during and following the bushfires. We expect that respondents might see the
survey as an opportunity to express their opinions and be heard. The survey is
divided into sections, at the beginning of each section, the participants will
be told the topics of questions that are coming up. Participants will be told
that they can stop and re-start the online survey where they left off at any
time. This will also be pointed out when participants are completing the survey
on the phone or on in-person. We will provide information including contact numbers
for mental health and physical health concerns, and accessible, fee free local
services for those seeking professional assistance.
Data Storage: The anonymous data will be transferred to Monash
from the Social Research Centre and stored on a secure password-protected Monash
University S:/ drive, in accordance with the requirements of the Monash
University Code for the Responsible Conduct of Research. Data will be retained
at Monash University for at least seven years from the date of any publication
which is based upon the data, and then destroyed in accordance with the University
protocols.
Payment: No data including personal information, for example the
respondent’s address to receive the $30 voucher given in respectful recognition
of their time will be transferred to Monash. This process will be managed by
the Social Research Centre and the address deleted after the voucher has been
sent. Some respondents will indicate that they want to receive a summary of the
data. The SRC will provide Monash with a list of the email or postal addresses
of these people which could not be linked in any way to the dataset.
Indigenous Data Sovereignty: We are committed to Indigenous Data
Sovereignty. We will consult communities about the format in which they would
like their data made available, including in summary format or as a summary
report. The findings of the survey will be returned to the community to assist
in development and recovery efforts at a local level. Community members, and
organisations will be consulted prior to determining what kind of data
visualisation and dissemination is the most accessible / useful to them. It will be also disseminated to different
levels of government – local and state to inform policy reform for health
service provision before/during/after disasters, in regional communities. At
least one manuscript will be prepared for submission to a peer-reviewed
journal, as well as opportunities to disseminate the findings at public health,
academic and disaster management conferences and related forums.
Return of Data: Data will be returned to the communities to
non-Indigenous communities and organisations following similar principles to
the Indigenous Data Sovereignty, i.e. communities will be consulted and data
will be returned to them in the form that is most useful/ accessible to them.